Now What? That’s a good question. Another good question is why did I just trauma dump all over the internet? Well, first, let’s answer the second question. I wrote this whole series of posts in the hope that someone with Retinitis Pigmentosa finds it and realizes that though it’s a rare disease, they are not…
Cataracts Surgery OK. If there’s one thing that surprised me the most about having Retinitis Pigmentosa, it’s how quickly cataracts formed in my eyes. RP patients are very prone to them. For those of you who are too young to have even bothered thinking about cataracts, it’s a condition in which the fluid in your…
Culinary School It was after the ketamine treatment and hitting bottom that I decided to pivot from food photography and learn more about food itself. It was then that I decided to enroll at the Culinary Institute of America. With a history of graduating top culinarians in the field, going there seemed like a no-brainer….
A New Hope With the help of my very supportive parents, we found that one of the world’s leading doctors in genetic eye diseases—a man named Dr. Stephen Tsang—was located a mere half hour away at Columbia Medical Center. We paid him a visit, and he and his staff confirmed it was definitively RP. They…
How It All Started To Change It was the spring of 2017 when I started noticing some abnormalities in my vision. I’m not a morning person. I don’t wake up so much as attempt to compel my body to drag me toward the coffee machine. As that first pot brewed, I’d sit on the couch…
I’m Going Blind. It’s still crazy to me to write that out. Please bear with me as I tell my story. I promise it gets better in the end. But, I’m a photographer. It was my senior year of high school when I fell in love with photography. My humanities teacher, Mr. Wright, did a…